Wednesday, August 25, 2010











We had a great time in Maine, last weekend from Thursday to Sunday. Other than it being a little too touristy now than when we used to go when Luke was little, and not having anywhere to park our handicapped van @ the hotel (don't get me started), it was nice to get away from town. Sammy (and even Luke) had a good time at the zoo. The ocean is freezing there, but Sam loved to splash in the waves anyway! Not me! ;)

We had gorgeous weather all the days we were there except for Sunday when we were coming back anyway. Took us 5 hours to get back with all of the traffic and pouring rain. :( At least Luke got to read half his book in the van! :)

Sunday, August 15, 2010

My little man's a BIG BOY!



Sammy's first tooth came out this morning! ok, I pulled it out... it has been loose for like a month and finally just got crazy loose last night. So when he woke up this morning, we tried to yank it and it came out! Sammy thinks it's cool, and he just looks so darn cute when every once in a while he makes voices and his mouth opens wide enough to see the tooth space! ;) My little man is now a BIG BOY! :)

Tuesday, August 3, 2010

Sammy round of Botox #2

So we traveled to Northampton today to get Sammy's second round of Botox. They upped the dosage in each muscle so we'll see what happens. We had noticed a very small improvement in his tightness after the last round, but he had such a small dose that we weren't expecting miracles anyway....
He was good for the insane amount of waiting we had to do... we were brought in to get his numbing creme on and then waited for 40 minutes to get the shots..in the meantime the entire amount of creme rubbed off his leg onto this ridiculous paper thing they gave us to put on his legs over the creme. Usually they saran wrap it because it is supposed to be occluded, but the nurse said she couldn't find the saran wrap. So basically he got the shots with no numbing. He fussed some while they did the shots, and then when they were done, he looked at me and burst into hysterical tears. Poor guy! He got over it as soon as we got up to go...he is so good about pain and procedures, thank God! He was so funny on the way home, laughing and bicycling his legs and "talking" to his Elmo video. Luke went with me as my backup since Brian FINALLY is back to work and couldn't leave since he just started back this week and is traveling an hour each way. Thank God for the work, though! It'll be nice to have 2 paychecks again! :) We joked that with me being the only one bringing home the bacon, it was getting pretty lean around here! ;) Pun intended! :)
So good stuff.... no more appts. for right now until Sept. 28 for a follow-up with the Botox guy and then the 29th he is finally getting his teeth worked on. It is an ordeal since he needs general anesthesia for it and the outpatient center in town. My ins. refuses to pay for it and we have been desperately trying to get the Mass Health (state Medicaid) for his disability pushed through to cover it. I finally went to a local advocacy group and they are going to get it approved within a few weeks they said. Praise God! I am so thankful they exist...what would we do?? Another "window has been opened".... :)
Going to Maine in about 2 weeks..very excited for that! Just going for 3 nights but I can't wait to hear that ocean! mmmmm.... We didn't go to the Cape with the sisters this year, so this is especially sweet! :)
Guess that's it for now... Luke is doing well... trying to get in as much fishing as possible...no pics to share yet... loving having some time with my older boy after Sammy goes to bed. :)