Hibbards&Hubers

Sunday, July 18, 2010

Had a great week with my sister Annie staying with us from Reno. The week always flies by WAY too quickly! It's too quiet and lonely in my house now... :(
Some pics from the week... Us golfing and Sammy with a pumpkin Mr. potato head mustache.

Oh, and good news from Boston...we went for our 3rd swallow study on Friday to Mass. General. (yeah the hospital on BostonMed!) He only aspirated the bottle and then didn't when it was thickened to nectar! Yah! So no g tube for the present time anyway. The ENT doc was very impressed with the results and told us to just keep doing what we're doing and to thicken the liquids and as long as he can stay away from the pneumonias this winter, we can avoid the tube. We are very happy about this news...now on to getting his teeth taken care of...trying to figure out who to go to that might be covered by our ins. If not, it's out of pocket to put him out to do all the work...onward and upward....

5 comments:

Dawn said...: Great news on the swallow study! No pneumonia this winter...I command thee no pneumonia.

Love all the pics. Is that your sis or you in the pic? Sure looks like you but I've never seen her so don't know.; July 19, 2010 at 4:19 AM
ellen :) said...: From your mouth to God's ears, Dawn! :)

that's Annie in the pic....she's about 6 inches shorter than me and 30 lbs. lighter! ;) It's funny that out of the 8 kids in our family, I think I look most like my brother! Weird!; July 19, 2010 at 10:53 AM
Sheila said...: Glad you had a good time with your sister. This whole dang summer is flying by too fast! Great news on the swallow study. I'm so glad you kept going til you got the best answer and the one you wanted! Fingers crossed for no pneumonia this winter! Love the pics!; July 19, 2010 at 9:04 PM
Dawn said...: Well Ellen - Now when I look down at your fish pic...eh I still thought maybe it was you. ;) She is tiny though standing next to Luke but I imagine he's got you beat too. And holy crap, there are 8 of you? Good Catholic parents you had. :); July 19, 2010 at 9:47 PM
ellen :) said...: Sheila,
Thanks for the good wishes for this winter. We need them! :) I am hoping that if we chunk him up and get him super vitamin-powered he'll be ok! :) We have switched to Ensure Plus..it has more fat and calories and vitamins. We'll see if it helps...

Dawn, yeah... Luke and I were walking next to each other the other day and I noticed he's coming close to being my height. He last measured at 5'5 1/2 ". I'm 5'8", so at least I have another year or so! ;)
And yeah,REALLY good Catholic parents! ;) Lots of rainy days with nothing much else to do I guess! :) LOL; July 19, 2010 at 10:09 PM

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God Chooses A Mom for A Disabled Childby Erma Bombeck
Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudledge, Carrie; twins; patron saint.... give her Gerard. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and independance. She'll have to teach the child to live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't seperate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.
"I will permit her to see clearly the things I see --- ignorance, cruelty, prejudice --- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in midair.
God smiles. "A mirror will suffice."

Sunday, July 18, 2010

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