We went to get Sam's first Botox injections today with his physiatrist. He made us feel very comfortable with getting the shots...not sure if we looked nervous or what, but we have been on board with this from the get-go,so I'm not sure why he felt we needed such intense reassurance.
So he put the numbing cream on his leg and wrapped his leg with pink saran wrap. He thought that was the coolest. He was ok for the shot part, he only flinched and started to fuss, but he only got 4 shots total, even though it was a lot of fluid each, so it was over relatively quickly and he was fine afterward...didn't actually cry. My little trooper! So we told him because he was so brave that we would stop at the store and get him a treat. So Brian got him and Luke a pastry and after dinner I asked him if he wanted it and he looked upset. So I asked him what he wanted for a treat, and he looked to the cabinet. The kid wanted his Gerber yogurt snacks for a treat! He is SO NOT my son! Passing up sugar for yogurt??!! UGH! I have failed in my role as a mom! :) LOL
So we wait now and pray that he doesn't get any swallowing issues or breathing issues that sometimes happens with kids who have issues to begin with. We also have to wait 3-5 days to start to see if this is going to have any effect whatsoever. He did a low dose to help prevent the side effects,so we aren't expecting any major benefits...anything would be good though!
Might be going on Friday since we all have the day off to Boston to go pick up Sammy's talking computer. We'll see!
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Followers
God Chooses A Mom for A Disabled Childby Erma Bombeck
Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudledge, Carrie; twins; patron saint.... give her Gerard. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and independance. She'll have to teach the child to live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't seperate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.
"I will permit her to see clearly the things I see --- ignorance, cruelty, prejudice --- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in midair.
God smiles. "A mirror will suffice."
Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudledge, Carrie; twins; patron saint.... give her Gerard. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and independance. She'll have to teach the child to live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't seperate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.
"I will permit her to see clearly the things I see --- ignorance, cruelty, prejudice --- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in midair.
God smiles. "A mirror will suffice."
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March
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- Sammy's Botox
- YAH!! Brian got an email last night that Sammy's ...
- So poor Luke was sent home yesterday from school f...
- off again...
- We had our follow-up with the GI doc today in town...
- Ok, I just looked up croup, and it totally sounds ...
- So now I have a sick Luke at home today. He came ...
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About Me
- ellen :)
- MA
- I'm a wife of 8 years, a mom of 2 gorgeous boys, one who has CP, and a lover of turtles! :)
2 comments:
Wow, that boy is amazing! I sure would've been screaming after 4 shots! I hope that all goes well and you see some good results! Love the yogurt story! Wouldn't have been my choice over sugar either!
thanks, Sheila! He surprises me all the time! :)
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